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Managing Chronic Health Needs in Child Care and Schools

Edited by Elaine A. Donoghue, MD, FAAP and Colleen A. Kraft, MD, FAAP
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This all-new guide provides resources and strategies to help care for children with chronic medical conditions and special health care needs in the community and school setting. Covers a spectrum of chronic illnesses, acute situations, and selected developmental and behavioral problems, with a special emphasis on children with special health care needs. Includes more than 35 condition-specific quick reference fact sheets, signs and symptoms, when to call emergency services, medication administration, and ready-to-use sample forms and care plans.

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  1. Page 1
    1. Introduction: Safe and Appropriate Care of Children With Chronic Health Needs
    1. Page 3
      From the Editors About the Book Title
    2. Page 3
      Overview
  2. Page 5
    2. Background
    1. Page 7
      Families, Health Professionals, and Child Care/Schools: A Three-Way Communication
    2. Page 7
      Individuals With Disabilities Education Act (IDEA)
    3. Page 8
      Early Intervention (Part C of IDEA)
    4. Page 9
      Special Education and Related Services (Part B of IDEA)
    5. Page 10
      Special Needs in Grades K Through 12
  3. Page 13
    3. The Treatment Team: Partners in Caring for Children With Chronic Health Needs
    1. Page 15
      Core Team
    2. Page 15
      Other Team Members
    3. Page 16
      Role of the Health Consultant
    4. Page 16
      Role of Therapists
    5. Page 16
      Medical Home
    6. Page 16
      Benefits of a Medical Home
    7. Page 17
      Pediatric Subspecialists
  4. Page 19
    4. Care Plans
    1. Page 21
      Care Plans: An Overview
    2. Page 22
      Which Children Need a Care Plan?
    3. Page 22
      Why Do Child Care/Schools Need Care Plans?
    4. Page 22
      What Should a Care Plan Include?
    5. Page 22
      Who Is Responsible for the Care Plan?
    6. Page 22
      Health Care Professional Responsibilities
    7. Page 22
      Parent/Guardian Responsibilities
    8. Page 22
      Child Care/School Responsibilities
    9. Page 23
      Tips for Completing the Care Plan
    10. Page 23
      Care Plans for Schools
  5. Page 25
    5. Special Care Plan Implementation Strategies for Caregivers/Teachers
    1. Page 27
      Developing and Implementing the Special Care Plan
    2. Page 29
      Model Child Care Policies and School Regulations Support Inclusion
    3. Page 30
      Communication
  6. Page 31
    6. Medication Administration Issues
    1. Page 33
      Federal Law, Standards, and State Regulations
    2. Page 33
      Nursing Delegation and Medication Administration
    3. Page 34
      Best-Practice Medication Administration: Essential Elements
    4. Page 36
      Ongoing Support by a Health Consultant
    5. Page 36
      Advocating for Training and Support
  7. Page 37
    7. Handling Symptoms That Develop While a Child Is in Child Care or School
    1. Page 39
      Hints for Recording Observations
    2. Page 39
      Important Symptoms to Note
  8. Page 41
    8. Planning for Emergencies
    1. Page 43
      When to Call Emergency Medical Services (and Also Notify Parents)
    2. Page 44
      Situations That Require Urgent Medical Attention
    3. Page 44
      Do-Not-Resuscitate Plans in Schools
  9. Page 45
    9. How to Use the Quick Reference Sheets
  10. Page 49
    10. Quick Reference Sheets
    1. Page 51
      Achondroplasia (Short Stature Conditions)
    2. Page 53
      Allergic Skin Conditions
    3. Page 57
      Allergies: An Overview
    4. Page 59
      Altered Immunity: An Overview
    5. Page 61
      Anaphylaxis
    6. Page 65
      Asthma
    7. Page 69
      Attention-Deficit/Hyperactivity Disorder (ADHD)
    8. Page 71
      Autism Spectrum Disorders
    9. Page 73
      Bleeding Disorders: An Overview
    10. Page 75
      Cancer
    11. Page 77
      Celiac Disease (Gluten-Sensitive Enteropathy)
    12. Page 79
      Cerebral Palsy
    13. Page 81
      Cleft Lip and Cleft Palate
    14. Page 83
      Cystic Fibrosis
    15. Page 85
      Diabetes
    16. Page 89
      Down Syndrome
    17. Page 91
      Gastroesophageal Reflux Disease (GERD)
    18. Page 93
      Gastrostomy Tubes
    19. Page 95
      Hearing Loss and Deafness
    20. Page 99
      Heart Conditions: An Overview
    21. Page 101
      Heart Conditions, Functional
    22. Page 105
      Heart Defects, Structural
    23. Page 107
      Hepatitis
    24. Page 109
      Human Immunodeficiency Virus (HIV)
    25. Page 111
      Hydrocephalus and Shunts
    26. Page 113
      Idiopathic Thrombocytopenic Purpura
    27. Page 115
      Kidney/Urinary Problems
    28. Page 119
      Premature Newborns (Preemies): An Overview
    29. Page 123
      Seizures, Febrile
    30. Page 125
      Seizures, Non-febrile (Epilepsy)
    31. Page 127
      Sickle Cell Disease
    32. Page 129
      Special Diets and Inborn Errors of Metabolism
    33. Page 131
      Spina Bifida
    34. Page 133
      Spleen Problems
    35. Page 135
      Tracheostomy
    36. Page 137
      Turner Syndrome
    37. Page 139
      Visual Impairments
  11. Page 141
    11. Sample Documents and Forms
    1. Page 145
      Medication Administration Packet
    2. Page 149
      Medication Incident Report
    3. Page 151
      Preparing to Give Medication
    4. Page 153
      Information Exchange on Children With Health Concerns Form
    5. Page 154
      Consent for Release of Information Form
    6. Page 155
      Parent/Health Professional Release Form
    7. Page 157
      Sample Consent Form to Obtain Health Insurance Portability and Accountability Act (HIPAA) Privacy-Protected Information From a Child’s Physician or Primary Health Care Provider
    8. Page 159
      Emergency Information Form for Children With Special Needs
    9. Page 161
      Care Plan for Children With Special Health Needs
    10. Page 163
      Special Health Care Plan
    11. Page 167
      Sample Asthma Action Plan
    12. Page 171
      Asthma Treatment Plan
    13. Page 173
      When Should Students With Asthma or Allergies Carry and Self-Administer Emergency Medications at School?
    14. Page 175
      Adaptive Equipment for Children With Special Needs
    15. Page 179
      Elements of a Do-Not-Resuscitate Plan for Schools
    16. Page 181
      Americans With Disabilities Act: Commonly Asked Questions Related to Giving Medicine in Child Care
    17. Page 183
      Questions and Answers: IDEA & Child Care
    18. Page 187
      Choosing Quality Child Care: What’s Best for Your Family?
  12. Page 201
    Glossary
  13. Page 197
    Additional Resources
  14. Page 203
    Index

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